October 4, 2022
30 years of IPOPI
Three decades ago, Bob LeBien with his vision and his leadership created IPOPI. At first, it was a group of ambitious and imaginative people coming together to create an organisation that would represent PID patients internationally. It is incredible how far IPOPI has come since then.
IPOPI now represents a community that is the extended primary immunodeficiency family. IPOPI has 69 National Member Organisations (and counting) and currently develops Regional and National PID expert meetings, Publications, Collaborations with Regional Scientific Societies, regular PID Forums at European Parliament, SCID Newborn Screening Programmes, Clinical Congresses, World PI Week campaigns, the PID Life Index, the Q-ID App, 4ID App and so much more.
10957,5 days of milestones that have inspired and motivated: International Primary Immunodeficiency Congress (IPIC); Immunoglobulins reinstated on the World Health Organization’s Essential Medicines List following a joint stakeholders’ campaign led by IPOPI and the International Union of Immunological Societies (IUIS); IPOPI accepted as a member of the WHO Global Collaboration on Blood Safety; Collaborations with key international organisations: World Health Organisation (WHO), Asia Pacific Economic Co-operation (APEC) and much more.
This year the IPOPI Global Patients’ Meeting is in Gothenburg, Sweden. This is a wonderful tribute to Bob LeBien as it was in Gothenburg, in 1996, that it was announced that Bob LeBien would become IPOPI’s first honorary life President, as stated in the first issue of IPOPI´s Newsletter.
