June 17, 2024

World PI Week 2024: Advocating for access to care for all PID patients

This year, the World PI Week campaign spotlighted a crucial theme: “Access to care for all patients with primary immunodeficiency (PID), everywhere”. The message was clear: Let’s make early diagnosis and timely access to quality treatment a reality worldwide. Stakeholders from across the globe rallied under this important cause, uniting their efforts to highlight the challenges and advancements in PID care.

From April 22-29, IPOPI celebrated World PI Week with a series of impactful events and activities. Throughout this week, 37 National Member Organisations (NMOs) launched innovative initiatives to raise awareness about PIDs. These activities included artist gatherings, PID conferences, family days, social media campaigns, educational videos, and so much more. IPOPI thanks CSL Behring, Grifols, and Takeda for their support, which enabled the support of numerous outstanding initiatives during World PI Week. Check out our report video here.

Additionally, IPOPI launched a video campaign featuring testimonies from NMOs worldwide. These shared experiences and challenges in accessing PID care emphasized the importance of timely and quality treatment, early diagnosis, specialised centres for PID treatment, and reimbursement.

World PI Week 2024 was a resounding success, bringing together diverse voices. Now let’s keep the momentum going! Together, we can work to ensure that every PID patient gets the specialised care they need, no matter where they are.

Are you interested in learning more about WPIW 2024? Keep an eye out for the WPIW report, it’s soon available here.