July 18, 2023

World PI Week 2023: Data-Driven Care for PIDs

This year’s World PI Week 2023 campaign, held on April 22-29, focused on turning real-world data into knowledge for better care for patients with Primary Immunodeficiencies (PIDs).

An impressive milestone was achieved as IPOPI supported a record number of 38 National Member Organisations (NMOs), underscoring the strong engagement of patient organisations worldwide.

Throughout this week, diverse activities were organised across the globe to shed light on PIDs. These activities included PID congresses, impactful social media campaigns, walks, kite-flying events, press conferences, and patient surveys, among so many others. IPOPI thanks CSL Behring, Grifols, and Takeda for their support, which enabled the support of numerous outstanding initiatives during World PI Week.

Additionally, IPOPI launched a fantastic campaign during World PI Week, featuring video interviews with individuals from four continents. These videos emphasised the crucial need for improved data collection to enhance the quality of care for PID patients and showcased examples of the hurdles that patient organisations face when engaging in this activity.

During World PI Week 2023, there was an impressive level of engagement from the global PID community, patient organisations, healthcare professionals, and other stakeholders. The campaign demonstrated the collective power of collaboration and highlighted the crucial role of data collection in improving the quality of life for individuals with PIDs.

Interested in reading more about the World PI 2023 campaign? Visit the WPIW website here.