December 15, 2023

Advancing PID Advocacy: Highlights from the IPOPI National Workshop in Indonesia

The IPOPI National PID Advocacy and Awareness Workshop was held in Jakarta, Indonesia on November 25-26, 2023, in collaboration with IPOPI´s Indonesian member, IPIPS, and its medical advisory panel.

Bringing together key patient leaders and medical advisors, the workshop focused on analysing challenges and identifying opportunities for the improvement of care for individuals with Primary Immunodeficiencies (PIDs) in Indonesia.

Collectively with IPOPI, patient leaders and medical advisors from IPIPS developed targeted plans aimed at addressing the unique landscape of PID in Indonesia, marking a crucial step in empowering and preparing the local community for impactful advocacy.

In summary, the IPOPI workshop in Indonesia emphasised crucial advocacy skills. Participants learned the importance of fostering connections, tailoring messages, and seizing opportunities in the dynamic advocacy landscape. The workshop highlighted the need to be strategic, prioritise effectively, and collaborate with fellow PID stakeholders for a more impactful and focused advocacy approach.

This meeting was made possible thanks to the support from Takeda.