July 04, 2018

US – News from the Immune Deficiency Foundation

IDF Publications Available in Spanish

For over 35 years, IDF has offered a full spectrum of educational publications, programs and resources developed by experts for patients, families and healthcare professionals about primary immunodeficiency diseases (PI). Written in English, many of IDF’s publications have been translated into other languages to be used around the world. In particular, IDF has multiple resources available in Spanish. Click here to view IDF’s resources in Spanish.
Click here to contact IDF about translating an IDF publication.

The new and improved IDF Friends is here

IDF is proud to announce the launch of the newly updated IDF Friends website! IDF Friends is a supportive, private online community for people living with primary immunodeficiency diseases (PI), where members can post discussion topics, ask questions, share stories, get support, connect with others who have similar experiences, and more. The updated website includes a modern new design, easy navigation and exciting new features, including the ability to chat with members and additional new developments.
Log in or register to get started. Click here to view the new IDF Friends website.

IDF Friends is made possible by charitable donations from CSL Behring and Shire.

IDF Guide to Hematopoietic Stem Cell Transplantation

This guide includes Hematopoietic Stem Cell Transplantation (HSCT) approaches that could potentially benefit patients with several types of PI. Subsequent chapters provide more details as to how a patient is prepared for a transplant, what the transplant experience is like, and what life can be like after a transplant.
Click here to download the new guide.

This publication has been made possible through the IDF SCID Initiative and the SCID, Angels for Life Foundation.