March 25, 2021

US – IDF conference in June and SCID Compass Summit in April

On June 23-26, the Immune Deficiency Foundation will be hosting the IDF Primary Immunodeficiency Conference. This virtual event will bring together patients, caregivers, and providers for a four-day conference offering opportunities for connection and learning. Registration opens late April 2021.
The IDF Primary Immunodeficiency Conference is a platform for all facets of the PI community. From physicians to nurses to specialized life management experts, individuals and families are presented with an unsurpassed opportunity to network with those on the cutting edge of research and treatment. Learn more at

Thought leaders join for third annual SCID Compass Summit

This two-day summit (11 am – 3 pm on April 29 and 30) will bring together researchers, parents, patients, and thought leaders to learn, connect, and engage on issues surrounding newborn screening, telehealth/virtual care, genetic counseling, and other issues related to severe combined immunodeficiency (SCID). This event is free and open to the public.  Learn more and register at

A program of the Immune Deficiency Foundation, SCID Compass is funded through a federal grant from the Health Resources and Services Administration, an agency of the U.S. Department of Health and Human Services. SCID Compass is a program designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of learning about this rare life-threatening medical disorder and finding support to navigate the lifelong health challenges.

HRSA Acknowledgement/Disclaimer: This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $2.97 million with 0% financed with nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government.