June 17, 2024
SVAI (Swiss patient organisation for PID) website now available in French
The Swiss patient organisation for PID informs the public about immunodeficiencies and raises awareness for the concerns of affected people. It promotes research, diagnosis and therapy in the field of PIDs.
Last year, we redesigned our website. With a fresh and modern look, our revamped website serves as an inviting platform to engage and empower visitors, providing them with comprehensive information about PIDs and fostering a sense of community. We aim for visitors who are seeking support, information, or connections with others who share similar experiences.
We are very happy to announce that our webpage is now available in French.
For the podcasts series we developed, we have received very good feedback so far. We bring insightful interviews with experts from various fields, ranging from therapies and medications to psychological aspects. Our mission is to shed light on the complexities of PIDs, raise awareness and empower individuals living with these conditions. Our experts explain the importance of early diagnosis and the challenges faced by individuals with PIDs. Our guests, including renowned immunologists and healthcare professionals, discuss practical aspects as well as general advancements in the field. We explore various treatment options, such as immunoglobulin replacement therapy, stem cell transplantation, gene therapy, and emerging therapies on the horizon. The world of primary immunodeficiencies is constantly evolving, and research plays a crucial role in shaping the future of treatment options. One particularly touching podcast is a mother talking about her personal experience with the diagnosis and treatment of her child. Unfortunately, the podcasts are only available in German.
