July 18, 2023
SVAI – Swiss patient organisation for PID launches new website
The Swiss patient organisation for PID informs the public about immunodeficiencies and raises awareness for the concerns of affected people. It promotes research, diagnosis, and therapy in the field of PIDs.
Over the past months, we have redesigned our website dedicated to raising awareness and educating individuals about primary immunodeficiencies. With a fresh and modern look, our revamped website serves as an inviting platform to engage and empower visitors, providing them with comprehensive information about PIDs and fostering a sense of community. We aim for visitors who are seeking support, information, or connections with others who share similar experiences. One of the first things you’ll notice upon visiting our website is the visually appealing and modern design. It also improves navigation, making it easier for users to find the information they need. Visitors can easily sign up for newsletters, volunteer for awareness campaigns, or make donations to contribute to our ongoing efforts in educating people about PIDs and supporting affected individuals and their families.
New podcast series
As part of our relaunch strategy, we have developed a series of podcasts. We bring insightful interviews with experts from various fields, ranging from therapies and medications to psychological aspects. Our mission is to shed light on the complexities of PIDs, raise awareness, and empower individuals living with these conditions. Our experts explain the importance of early diagnosis and the challenges faced by individuals with PIDs. Our guests, including renowned immunologists and healthcare professionals, discuss practical aspects as well as general advancements in the field. We explore various treatment options, such as immunoglobulin replacement therapy, stem cell transplantation, gene therapy, and emerging therapies on the horizon. The world of primary immunodeficiencies is constantly evolving, and research plays a crucial role in shaping the future of treatment options. One particularly touching podcast is an affected mother talking about her personal experience, diagnosis, and treatment for her child. The feedback we have received so far on the podcasts is overly positive.
The podcasts are only available in German, but most of the website is planned in French as well.