October 28, 2026
Norwegian NMO Strengthens Peer Support and Digital Engagement
Living with a primary immunodeficiency (PID) can be challenging, and many people benefit from connecting with others who share similar experiences. No one should have to face a rare diagnosis alone. That belief has guided the Norwegian PID Organisation’s efforts to build an accessible and growing peer support community.
Over the past few years, we have worked actively to create opportunities for connection, support and shared experiences. One of our most important activities is our annual community gathering, where members from across Norway come together for education, experience sharing and social activities. We have also increased local peer support activities, creating opportunities for members to meet in smaller groups for conversations, shared meals and social events.
At the same time, we have expanded our presence through social media and our website. We regularly share educational content and information about our activities. Together with our closed Facebook groups, Messenger conversations, telephone contact and dedicated peer supporters, these channels help members stay connected and find support between face-to-face meetings. By showcasing local activities on social media, we have also seen members from other regions step forward and volunteer to organise similar peer-support activities in their own communities.
Over the past two years, membership in our organisation has grown by approximately 70%. We believe that combining personal connections through peer support with a strong digital presence has been a key factor in this development. Social media, our website, and word-of-mouth from members help people discover our community, while in-person meetings and peer support help them stay engaged.
We believe that every new participant is a reason to celebrate. If we touch even one life, we have made a difference. Our experience is that successful peer support does not require a large organisation. What matters most is creating welcoming meeting places, encouraging shared experiences, listening to one another, and building a sense of belonging. Through these efforts, we continue working towards our goal: ensuring that nobody living with PID in Norway has to face their diagnosis alone.
