WPIW family day
After the big success of the 2017 edition of our WPIW family day, the 2018 event grew to almost the double of participants. There were 9 workshops dedicated to the impact of having an immune disorder, bacterial resistance, newborn screening, among others, and there were also several creative, picture perfect workshops and various children’s activities. A very special and beautiful day in which people met each other, gain new insights and innovative ideas and got inspired by one another. Participants went home with a feeling of inspiration and satisfaction.
Ladies day was a highlight of 2017. This day was set up especially for women with a PID or women who are a family member of a patient with a PID. They shared their experience of living with a PID, as a patient, mother, daughter or sister. A coach guided the conversation so the ladies got to know each other better and the conversations came to a deeper level.
Young adults weekend
The SAS outdoor weekend “survivalist with an immune disorder” is organised for young adults from 16 to 35 years of age. This year we organised the SAS young adults’ weekend for the 5th time which shows well its success! Under professional guidance from an outdoor events’ organisation, the participants ventured into a variety of activities including a quad driving course and a ‘high team adventure’ with climbing activities. On Saturday evening there was time for exchanging experiences on how to deal with an immune disorder with a workshop ‘applying self-treatment’. A challenging and exciting experience.
SAS is raising awareness with the campaign “Always ill”. We inform people about primary immunodeficiencies and how to recognise and treat them. “Always ill” leaflets are placed in waiting rooms of family doctors and in pharmacies. Each year SAS has a stand at a yearly health fair and on the family doctors’ fair.