Advocacy White Paper
MyPOPI and MSAI jointly worked on an advocacy white paper detailing the hidden health threats and expert recommendations for better management of PID in Malaysia, with significant guidance and contribution of content from IPOPI.
The white paper was completed within 6 months and presented to the Secretary-General of Minister of Health on 7 December 2017 in which paved way to a historic meeting with the Director General of Health Malaysia on 22 January 2018. The outcome of the meeting with the Director General of Health was positive with the Ministry of Health’s commitment to send 1-2 medical practitioners to be trained as immunologists within the Ministry of Health in 2019 Currently there aren’t any trained immunologists in the Ministry of Health.
MyPOPI Family Day
With MyPOPI’s membership growing it was time to organise the first MyPOPI Family Day was held in2016 and was attended by 70 members. The strategic planning workshop session helped members to envision a desired future for the PID community in Malaysia and to draft a strategic plan.
MyPOPI beyond Malaysia
MyPOPI has extended its wings beyond the national boundaries by contributing to regional development. We are grateful for the opportunities given to share MyPOPI’s humble journey with patients and families in the Philippines, Indonesia and Taiwan, helping with their efforts towards similar objectives as MyPOPI.
In 2018, MyPOPI had the honour of co-hosting the South East Asia Media Training and Advocacy Workshop in Kuala Lumpur in conjunction with the National Clinical Immunology Symposium, organised by IPOPI in collaboration with MSAI and MyPOPI.
MyPOPI’s Secret of Success: TEAMWORK
MyPOPI’s success is not the work of an individual organisation. It requires collaboration and team work with various stakeholders who share the same vision. From patients, medical societies, patient organisations such as MyPOPI, IPOPI and Hemophilia Society of Malaysia, policy makers to industry players, every stakeholder has an important role to play in making it happen – all with the patients in mind!
“Individually, we are one drop. Together, we are an ocean” by Ryunosuke Satoro
By patients for patients!
MyPOPI is honored to be part of IPOPI as a national member organisation, with the opportunity to reach out to PID patients in Malaysia and beyond. MyPOPI is still very young but we are doing very well! Despite our achievements, this is no time to rest on our laurels. There is still a lot of work which needs to be done to ensure equal and better access of treatments for PI patients in Malaysia, helping them to have a better quality of life and reach their goals and dream despite living with PID.
For more information on MyPOPI, please visit us at www.mypopi.org