IDFA was formed in 2005 by IDF New Zealand and an immunologist, nurse and a few patients in Australia.
IDFA are great friends with IDFNZ – we meet at the ASCIA (Australasian Society for Clinical Immunology & Allergy) convention and share resources and information. It is good to have other NMO friends. They help with ideas and advice and patients love to meet other patients from across the sea!
I joined the IDFA Board in 2011 and became the Executive Officer in 2012. We have 9 members on our Board of Directors including a pediatric and adult immunologist, two accountants, and a range of other professionals with degrees in business, accounting and governance. Included in the Board are 3 PID patients and 2 PID parents.
I was fortunate enough to attend IPOPI in Florence in 2012 and was co-opted to the IPOPI Board. Last year at the AGM in Prague I was elected as a Board member and voted treasurer. It is a wonderful privilege being part of the IPOPI team. IPOPI have so many new NMOs joining and have resources and booklets to help. IPOPI is making a big difference throughout the world in areas such as newborn screening for SCID and access to immunoglobulin supply. IPOPI is now helping establish NMOs in Asia which is very exciting.
IDFA turned 10 this year and it has been a very busy year. Our membership has grown to over 1500! We have 900 patients and our other members include carers and health care professionals.
We live in a very large country and it is difficult to keep our PID community close. It is very important that our members feel part of our IDFA family so in everything we do, our motto for our members is IDFA = I Don’t Feel Alone.