March 29 , 2022

Newborn screening publication in The Lancet

IPOPI is pleased to continue our partnership with European Society for Immunodeficiencies (ESID) and International Society for Neonatal Screening (ISNS) under the Screen4Rare initiative along with The European Reference Network (ERN-RITA) and European Reference Network for Heredity Metabolic Disorders (MetabERN).

Following various discussions, the recent ‘Newborn screening as a fully integrated system to stimulate equity in neonatal screening in Europe publication’ paper was published in The Lancet journal. Listed in the article are ten elements for effective operation of NBS programmes in Europe.

The call to action was signed by 30 MEPs and the various aims have been divided into workstreams to be jointly executed by the ERNs and Screen4Rare stakeholders.

Read the full article here.