December 16, 2024

Bringing the PID-Expert Programme to Life

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A long wish for the Dutch Patient Organisation for Immunodeficiencies (Stichting voor Afweerstoornissen), finally came true this autumn. After years of dreaming and planning, we could finally start with our PID-Expert Programme.

Thanks to our sponsors, we were able to write a program in which 5 members of our organisation committed themselves to 3 days of learning how to share a story with impact and how to present yourself and your story. A professional marketing company helped by personally guiding our PID experts with tips and tricks. When putting 5 strangers in a room, with one commonality – they all have a PID – the ice was quickly broken, and personal stories and emotions were shared. And that’s the strength of such a programme: it’s not only about being able to express what it’s like living with an immunodeficiency but also accepting your illness and the impact it has on your life and on your loved ones.

The PID-Expert Programme enables us to raise awareness of immune disorders and to make patients’ personal perspectives visible. This allows our PID Experts to share their stories with healthcare providers, policymakers, and the public, thus contributing to greater understanding and knowledge about living with an immune disorder.

‘The strength of the PID Experts lies in the fact that they know best what it is like to live with an immune disorder.”

Read more about the program and our inspiring PID-Experts on our website: https://stichtingvoorafweerstoornis.nl/pid-expert-programma/