October 20, 2025

Lind Hosts PID Awareness and Education Events for Nurses, Patients, and Families

The Icelandic Patient Organisation (Lind) hosted a series of events in late September and October 2025 to raise awareness of primary immunodeficiencies (PID). Activities included educational sessions for nurses and families, a fun day for children with PID, and the launch of digital patient resources—alongside national media coverage.

Activities:

30.09.2025

Educational meeting for professional nurses, home care nurses and nurses working in the Icelandic school system.

Programme:

  • Immune deficiencies and treatment options
    Dr Sólrún Melkorka Maggadóttir

  • Introduction of the Department of Immunology website
    Presented by nurses from the Immunology Department
    Visit the website

  • Introduction, information, and demonstration on subcutaneous drug administration
    Þórunn Lárusdóttir & Hrefna Jónsdóttir, nurses

 

02.10.2025 – Educational Meeting for Parents and Newly Diagnosed Patients

Programme:

  • Living with PID and future possibilities in treatment and cure
    Dr Sólrún Melkorka Maggadóttir

  • Introduction of the Department of Immunology website
    Nurses from the Immunology Department

  • Case story from a parent and her son
    Þórunn Eva and Jón Sverrir Arnarson

  • Q&A Session

15.10.2025 – Fun Day for Children with PID and Siblings

Held at: Minigardurinn

A joyful day of play and connection for young PID patients and their families.

20.10.2025 – Educational Materials Go Digital

All brochures are being scanned and will be uploaded to the website before the end of the month for easier access by patients and professionals.

Media coverage: