Indonesia is an island state with a population of 260 million scattered in 17,000 islands. There are 6 PID referral centres located in two islands in Indonesia but only one centre offers state reimbursed Intravenous Immunoglobulin treatment. Bone marrow transplantation is not available for PIDs in the country. Patients in Indonesia struggle to receive accurate diagnosis and treatment and the ones that can afford it have to travel abroad to get the care they need.
IPOPI Bob LeBien Asian Development Programme
IPOPI has been organising numerous meetings in the South East Asian region (Philippines, Taiwan, Thailand, Malaysia, Vietnam, Indonesia, Singapore and Hong Kong) under the Bob LeBien Asian Development Programme. IPOPI works in collaboration with its national member organisations and doctors’ societies in the region to raise awareness of PIDs through the launch of new national patient groups and the organisation of clinical care events. IPOPI is convinced that through these collaborative efforts improved diagnosis rates and better access to treatment will be achieved in the region.