IPOPI’s Burden of Treatment Survey has been successfully launched in several European countries. After the successful launch in the United Kingdom, the National Patient Organisations in Sweden, the Netherlands, Denmark and Germany have started contacting their members in order to invite them to contribute to this exciting project.
In the United Kingdom, PID UK started inviting patients to participate on the occasion of World Primary Immunodeficiencies Week. Thanks to the efforts of the NMO and the great enthusiasm from the patients, more than 40 completed surveys have been received.
It is foreseen that the project will start very soon in Poland, France, Italy, Canada and the United States. Patients from any of these countries interested in participating in the survey should get in contact with their national patient organisation for further information.
More information on the Burden of Treatment Survey can be found here.