The 3rd APEC (Asia Pacific Economic Cooperation) Blood Supply Chain Policy Forum was held in Hanoi, Vietnam, on 8-9 December 2016. IPOPI was delighted to be invited to partake into this important event.
Mr Bruce Lim, IPOPI’s Board Member (Malaysia), was invited to be a speaker at the meeting. Mr Lim provided a presentation on “Addressing PID Patients Needs in the APEC Region”. In his talk, Mr Lim provided attendees with an overview of IPOPI’s activities, primary immunodeficiencies as a key subgroup of rare diseases and priorities facing PID patients in the Asia Pacific region.
He specifically highlighted that whilst Asia represents close to 60% of the world population, it only holds about 20% of the plasma derived medicinal products world market. Many countries do not include IG therapies in the list of reimbursed drugs and the access to IG therapies is uneven throughout the region. In particular SCIG therapies are not available in most countries despite the fact patients living in remote areas could really benefit from home treatment. He also pointed out that the level of under-diagnosis in the region is significant and that adult care remains very poor.
Mr Lim referred to the PLUS Consensus Statements which highlight the need to put the patients’ interest at the centre of all policy and regulatory discussions that may impact their access to PDMPs and provide useful pointers as to what is needed with regards to blood and plasma management. Mr Lim stressed the urgent need to improve GMP practises and implement measures to avoid the wastage of plasma recovered from whole blood. He also emphasised that it is of utmost importance to provide an adequate supply of PDMPs from recovered and source plasma to meet patient needs on a global level. Lastly Mr Lim went over the PID Principles of Care, a key publication which was led by IPOPI in collaboration with a panel of international experts in the field and which lays out the fundamental principles of care that should be met in any given country to attain gold standard care for PIDs.