October 4, 2021

IPOPI 18th PID Forum Cross-Border Healthcare Directive

Spotlight on curative treatments for PID patients

On July 13th, 2021, IPOPI (International Patient Organisation for Primary Immunodeficiencies) organised its 18th PID Forum titled “Cross-Border Healthcare Directive: Spotlight on curative treatments for PID patients”. The online event was co-hosted by Members of the European Parliament (MEPs) Tomislav Sokol (EPP, Croatia); Alex Agius Saliba (S&D, Malta); Radka Maxová (S&D, Czech Republic), and moderated by Mr Johan Prevot, Executive Director of IPOPI.

Participants of the 18th IPOPI PID Forum analysed the current status of curative treatments for primary immunodeficiency (PID) patients in the EU and whether the Directive 2011/24/EU of the European Parliament and of the Council of 9th March 2011 on the application of patients’ rights in cross-border healthcare (also known as the Cross-Border Healthcare Directive – CHBD), is an opportunity to make these treatments more accessible to patients. The outcome of these discussions will be presented to the European Commission via their public consultation on “Cross-border healthcare – evaluation of patients’ rights” open until 27th July 2021.

The event unfolded with MEP Tomislav Sokol (EPP, Croatia), MEP Alex Agius Saliba (S&D, Malta) and MEP Radka Maxová (S&D, Czech Republic) confirming their political support to the PID community when it comes to addressing their needs when seeking access to curative treatment.

More details about the meeting here