July 18, 2023
Celebrating International Neonatal Screening Day on June 28!
Every June 28, for the past three years, the world commemorates the International Neonatal Screening Day (INSD). INSD is a Screen4Rare initiative, and during this day, we highlight the immense impact of neonatal screening for treatable rare diseases, in facilitating early detection and diagnosis of diseases and timely access to treatment and care.
This INSD, Screen4Rare, a collaborative initiative led by IPOPI, the European Society for Immunodeficiency and the International Society for Neonatal Screening, organised a meeting in collaboration with the Members of the European Parliament (MEP) Alliance for newborn screening for rare diseases in Brussels. The meeting was hosted by MEP Katerina Konecna (The Left, Czechia) and had the participation of the offices of MEP Stelios Kympouropoulos (EPP, Greece) and Brando Benifei (S&D, Italy), as well as Screen4Rare’s partners and supporters.
This important political event was coupled with a global social media campaign joined by many IPOPI National Member Organisations, highlighting the importance of screening for severe combined immunodeficiency.
IPOPI contributed to this campaign by sharing SCID newborn screening videos from different regions of the world. It was great to hear IPOPI Board members discuss newborn screening in Latin America, Malaysia, Africa, Canada & the US. Many countries around the world joined and celebrated the global call to ensure that every newborn with SCID is provided with the best possible start in life, no matter where they are born.
The INSD campaign has gained track and visibility over the past three editions, and we look forward to seeing it continue to grow in the coming years!