March 16, 2026
IDFA (Australia) celebrates 20 years of connection and community
On Rare Disease Day, the Immune Deficiencies Foundation Australia (IDFA) proudly marked a significant milestone – 20 years of supporting Australians living with primary immunodeficiencies. To celebrate, more than 100 members, healthcare professionals, partners and key stakeholders gathered in Sydney for a day filled with connection, reflection and celebration.
The event brought together many of the people who have played an integral role in IDFA’s journey over the past two decades, alongside members and families who continue to shape the future of our community.
Throughout the day, attendees took part in a range of activities designed to celebrate our history while looking ahead to what comes next. A highlight of the day was the launch of the children’s book What Does Brave Look Like? — a special project developed by a dedicated team of volunteers to help young children better understand what it means to live with an immunodeficiency.
Members also attended the panel discussion, From Then to Now and Beyond, where speakers reflected on how far the community has come over the past 20 years, shared personal experiences, and discussed the opportunities and challenges that lie ahead for people living with primary immunodeficiency.
The day created many opportunities for members to connect through networking sessions and breakout groups, including dedicated discussions for Circle of Support participants and young adults, allowing them to share experiences and build meaningful connections
For families attending, there were also plenty of activities for children to enjoy, including face painting, balloon animals and other fun entertainment, helping ensure the day was welcoming and engaging for all ages.
The celebrations continued into the evening with a special dinner celebration, where guests gathered to reflect on the organisation’s journey. The night included a photo booth, lucky door prizes, plenty of laughter, and of course a celebratory cake, marking two decades of advocacy, support and community.
Most importantly, the event was a powerful reminder of the IDFA community’s strength. Over the past 20 years, the organisation has grown thanks to the dedication of members, volunteers, healthcare professionals and partners who continue to work together to improve awareness, support and outcomes for people living with primary immunodeficiencies.
As IDFA celebrates this milestone, they also look ahead with excitement and determination to the next chapter of its journey.
