June 17, 2024

IDFA Celebrates World PI Week – It is time to shine a light on ‘Hidden Disabilities’

For World PI Week 2024, Immune Deficiencies Foundation Australia (IDFA) collaborated with Australian Primary Immunodeficiency Patient Support (AusPIPS Inc.) to join the conversation around ‘hidden disabilities.’

As part of the campaign, IDFA launched a new National Disability Insurance Scheme (NDIS) booklet (Immunodeficiencies and Applying for the NDIS) to assist Australians to receive government support. This booklet was developed in conjunction with a local organisation who works in this field. From this, Carolyn Dews, IDFA CEO, spoke with Nick Rheinberger, on ABC local radio; Region Illawarra featured the story; Carolyn Dews and Carrie (an IDFA Member) were both featured on a WIN News story during World PI Week.

IDFA also hosted a webinar during World PI Week called ‘Ask IDFA’ which covered a wide range of topical questions frequently asked by members such as navigating treatments, products, and self-management for immunodeficiencies. It was a panel-style session, where members asked health professionals a range of questions and they were answered in real time.