October 9, 2023

IDFA Launch Self-Advocacy Toolkit

In collaboration with Blue Wren Advocacy, we have developed and launched the self-advocacy toolkit with tools specifically tailored to assist both individuals with an immunodeficiency as well as carers and families. The tools will assist you in navigating the health system through diagnosis, treatment options and ongoing appointments with healthcare providers.

Being diagnosed with an immunodeficiency can be a challenging and overwhelming journey. Often it can take years of frustrating appointments with doctors and specialists to receive a diagnosis, so it is important to remember that steps can be taken to empower you and your family during the process. Self-advocacy is key to receiving the best possible care, and we are committed to supporting you during the process.

The tools are available as downloadable documents on the IDFA website.

If you require any additional assistance, please reach out to us on 1800 100 198 or at info@idfa.org.au