October 9, 2023

Charting a Course for Global Progress in PIDs by 2030 

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Building on the recent publication of the 1st IPOPI Global Summit proceedings held in June 2022, a second edition took place in early September 2023 to further advance our collective efforts in shaping the direction of the PID field. This represents a significant step forward in our ongoing efforts to shape the future of primary immunodeficiency (PID) care.

Both summits gathered a selected group of PID stakeholders and experts from across the globe. It aimed to review and discuss the fast-evolving PID landscape and its current challenges while identifying common strategies and approaches to ensure continued improvement of patients’ access to early diagnosis and effective PID care.

Various topics relevant to PIDs were addressed, including diagnosis, treatment, interactions with other diseases, and avenues for future research. These topics were explored through presentations, lively debates and interactive brainstorming sessions covering areas such as newborn screening, genomic sequencing, therapeutic evolution of immunoglobulins, targeted therapies, curative approaches, and the impact of PIDs on patient-reported outcomes and quality of life.

The outcomes of the forward-thinking discussions from the first summit have recently been published in “Frontiers in Immunology”, ensuring that the valuable insights, recommendations and perspectives from the event reach a wider audience.

For more details, we invite you to access the publication here.