The first IPOPI Vietnamese PID Patients-Doctors National Meeting was a great success and culminated with the agreement to launch a patient group.
Over 80 participants from various regions in Vietnam including patients, family members, doctors, the Vietnamese Haemophilia Society and guest lecturers from The Netherlands and Thailand were in attendance. The event received good media attention with a 20 minute TV report being aired.
The first IPOPI Vietnamese PID Patients-Doctors National Meeting meeting was organised in collaboration with the National Paediatrics Hospital in Hanoi and the Vietnamese Paediatrics Association and took place at the Baoson Hotel on Thursday 3rd December 2015.
After a welcome address by Prof Lê Thị Minh Huong (Hanoi National Paediatrics Hospital), Prof Nguyen Cong Khanh (Vietnamese Paediatrics Association) and Jose Drabwell (IPOPI President) the meeting started with a scientific session. Prof Van Hagen (IPOPI MAP Member, Netherlands and Thailand) first provided a presentation on “The immune system and PIDs” designed to provide an overview to the patients and families in attendance. The presentation described the basic function and various components of the innate immune system and the adaptive immune system, including the role of T-cells, B-cells and cytokines.
Dr Narissara Suratannon (Dr “May”, Thailand’s Chulalongkorn University Hospital) then followed with a most interesting presentation reviewing the progress of the Thai patient organisation (ThaiPOPI) since their creation and the work of SEAPID, the South East Asian Network of Experts on PID launched earlier this year in Bangkok with the support of IPOPI and the Care-for-Rare Foundation. She stated “ThaiPOPI was created at the initiative of IPOPI who you will realize after today will become your very good friends moving forward”.
Prof Lê Thị Minh Huong then talked about the PID experience in Vietnam going over the key challenges faced by patients and doctors but also outlying the great progress made in the last five years going from 2 diagnosed cases to 73. She expressed her wish to found “VietPOPI” so that Vietnamese patients with PID can have the support they deserve.