June 28, 2021
Digital innovation marking WPIW 2021
Digital innovation is two key words underpinning this year’s World Primary Immunodeficiencies Week (WPIW) activities for all PID stakeholders! IPOPI saw its national member organisations (NMOs) launch social media campaigns, webinars, live streams, drawing contests, educational videos, photo contests, virtual runs, letter writing campaigns to policy makers and much more, and this is only a sample of the many excellent initiatives that were organised during the 22-29 April this year. Supporting the activities of our NMOs is key for IPOPI and we felt inspired by all the innovative campaigns that were coordinated this year, turning some of the pandemic challenges into opportunities.
Impacted by the COVID-19 pandemic, WPIW 2021 was focused on three themes: 1) Plasma availability; 2) Patient safety and protection – focus on vaccination; 3) Quality of life and health outcomes.
These themes represent areas of specific concern during the pandemic but are recurring issues in the lives of patient with PID and truly deserve attention.
The themes were touched upon in various ways, for example in the campaign teaser videos and in the WPIW Talks podcast that were launched during the campaign week. The campaign also saw an increased engagement from key opinion leaders, mentioning the need for policy makers to ensure plasma supply so that patients with PID have access to their live saving treatments, ensuring a good quality of life.
Are you interested in reading the campaign report? Visit the WPIW website.