October 4, 2022

China – PID Care China introduces online chats for patients


PID Care China’s social media account Weixin platform has 1,910 followers at present, with more than 1,400 active PI patients within the online chat groups. Patients have very active communication every single day. Hearing from our patients, besides talking about the disease itself, many other topics are being discussed, including education, career, marriage and medical coverage etc.

Therefore, we launched our very first online face-to-face chat with our patients in August, with a second session in September. We invited our mascot designer Gene to share his life experiences with us as an Osteogenesis imperfecta patient and we also invited some members to guide patients on how to obtain better medical coverage for Immunoglobulin.

We learned a lot from each other and would like to thank all participants for being part of our PI family! We look forward to more of such meaningful and interactive sessions soon.