October 8, 2024
Nationwide SCID Newborn Screening in Australia
IDFA is excited to commemorate the collective efforts of patient organisations, patient advocates and healthcare professionals who played a pivotal role in ensuring that all babies in Australia are screened for SCID at birth. As of May 2024, all states and territories now include SCID in their newborn bloodspot screening test. This is two years after an announcement from the Australian Government that SCID was recommended for inclusion into the program.
To celebrate this occasion, IDFA held an event “The Journey Together Nationwide SCID Newborn Screening” highlighting those involved, and launching a flipbook, with key milestones, and commentary from those involved. IDFA has worked with SCID families to create and foster a very active and supportive group of people – SCID Connect.