July 5, 2022
Argentina – AAPIDP 2nd Virtual Congress
In April 2022 the Argentine Association for the Aid of the Patient with Primary Immunodeficiency (AAPIDP) organised the 2nd Virtual Congress for Patients with PID. The meeting took place during the World PI Week, on the 21 and 22 of April and was broadcast on YouTube and Facebook Live, reaching over one thousand viewers.
During the two-day congress, a diverse range of issues was addressed, encompassing legal matters as well as health-related topics such as new therapeutics for PIDs, vaccines and PIDs, hematologic, oncologic, and dermatological manifestations in PIDs. For more information on the event, please visit the congress website.
During the months of May and June AAPIDP continued organising group therapeutic workshops for patients and their families, focusing on dealing with chronic diseases.
Lastly, Mrs. Roberta Anido de Pena, President of AAPIDP and President of the Argentine Rare Diseases Federation (FADEPOF), took part, as representative of the latter, in the Ibero-American Alliance of Rare Diseases (ALIBER) which, alongside other rare diseases organisations, presented relevant data to Her Majesty the Queen of Spain concerning the sociosanitary and economic impact of rare diseases in Latin America.