Argentina is a very large country and we knew that the greatest difficulty for patients in terms of diagnosis and access to treatment was in the provinces. To overcome distances we began forming regional groups, working closely together with the immunologist doctors of each region.
Nowadays we have regional groups in La Plata, Mar del Plata, Mendoza, Cordoba, Santa Fe, Rosario and Tucumán. Regional groups provide their members with the possibility to get to know people going through the same difficulties, offer them information provided by health professionals, legal assistance and psychological support. They also contribute by organising regional meetings, immunoglobulin infusion workshops and disseminating educational material not only to patients but also to health professionals.
Our greatest achievement was to have been able to guarantee free legal assistance for patients and families with PIDs: law 3114 of the Government of the city of Buenos Aires provides free assistance for PID patients.
AAPIDP is honoured that our president Roberta Anido de Pena was invited in 2007 to integrate the IPOPI Board and was afterwards elected as the representative of the LATAM region.
Roberta and AAPIDP have helped neighbouring countries start national PID groups and guided them on how to get a correct diagnosis, often by coming to our country.