March 16, 2026
Listening to What Matters: Mapping the Needs of People Aged 60 and Over Living with Immunodeficiency in Quebec
The Association des Patients Immunodéficients du Québec (APIQ), the Canadian patient organisation in Québec, launched a continuous-improvement project to better understand the global health and day-to-day realities of people aged 60 and over living with immunodeficiency (primary and secondary). The primary objective was to better understand the needs of these members to guide the association’s action toward what matters most to them.
Co-designed with clinical partners, a quantitative survey was disseminated through APIQ’s mailing list and two immunoglobulin infusion centres. In total, 176 participants aged 60 and over living with primary or secondary immunodeficiencies contributed. The survey explored immunoglobulin therapies, living conditions and mental health.
Early analyses point to challenges linked to the chronic nature of immunoglobulin treatment, organisation of care, functional autonomy, and the impact of ageing on quality of life and psychological well-being. By grounding priorities in patient-reported needs, the project strengthens advocacy, helps target educational actions, and supports better allocation of philanthropic resources to interventions that can improve daily life for people living with immunodeficiency.
