October 20, 2025
IPOPI joins the celebration of 10 years of CPIG as a Leading Expert Centre for Inborn Errors of Immunity
On October 9, 2025, IPOPI was honoured to participate in the milestone symposium “A decade of multidisciplinary excellence at CPIG – Transforming diagnostics and care for patients with inborn errors of immunity (IEI)”, hosted by the Centre for Primary Immunodeficiency Ghent (CPIG) at the Music Centre De Bijloke, Ghent, Belgium. The event marked the 10th anniversary of CPIG as a Leading Expert Centre for Inborn Errors of Immunity, also known as Primary Immunodeficiencies, celebrating a decade of innovation and collaboration in improving the lives of people living with IEI.
“Today, we gather as clinicians, as researchers, all together to improve the diagnosis and outcome of patients.” Prof Dr Filomeen Haerynck, Coordinator of CPIG.
The symposium brought together clinicians, researchers, patient representatives, and policymakers to reflect on major achievements in the diagnosis and management of IEIs over the past decade and to envision the next steps for patient-centred care. Discussions spanned over five dedicated sessions, focusing on current IEI understanding, how research goes from the bedside to the bench and back again, neonatal screening, and the importance of multidisciplinary collaboration and addressing unmet needs and challenges in IEI care. In this context, Dr Nizar Mahlaoui, Chairman of the IPOPI’s Medical Advisory Panel, presented results on the importance of transition clinics and multidisciplinary involvement for rare disease care.
The essential role of patient organisations in bridging medical innovation and patient experience was underscored with the testimony from a young patient and his treating physician, and a dedicated lecture by RadioOrg, both addressing the unmet needs of patients and the value of strong bonds between the two communities. BePOPI, the Belgian patient organisation for primary immunodeficiencies, was also present to represent Belgian patients with IEI and offer information on their activities and role to participants.
IPOPI warmly congratulates CPIG on this remarkable milestone and its ongoing work to improve the diagnosis, management, and quality of life of patients with IEIs in Belgium. Through the collaborations established over the last decade between clinical, research, and patient communities, progress will flourish and make the future of IEI care even brighter.
